Brain Injury is the largest disability group in Nova Scotia affecting some 80,000 people.
It is also a group that is critically and chronically underserved.
Addendum to Putting People First Document 2013 Province of Nova Scotia
“There is a general lack of understanding about acquired brain injury and too few supports for the unique needs of that group. Too often, they are offered supports meant for people with intellectual disabilities or mental health issues, which do not reflect their realities and are a poor fit. In fact, the whole approach, philosophy, and goals of programs for people with acquired brain injury in fundamentally different than for those with other types of disability. This must be reflected in how programs are planned, how services are delivered and how care providers are trained and prepared for their roles. Typically, the health care system is highly responsive in treating the patient for the trauma that caused their brain injury, but once the acute phase of treatment is over, sometimes extending through to the beginning of rehabilitation, the individual and their family are largely left to fend for themselves to find the services they need.”
A large part of our work at Brain Injury Association of Nova Scotia is to advocate for change.
We seek to improve services and support for brain injury survivors and their families in Nova Scotia.
Our vision is that Nova Scotians living with acquired brain injury and their families/caregivers realize their potential through a continuum of programs, services and community supports throughout the province.
Moving A Mountain
On August 28, 2018, after 3+ years of work co-chairing the Acquired Brain Injury Strategy Project with the Department of Health and Wellness, there was a milestone funding announcement of five million dollars for various projects over four years.
Since that time, an Acquired Brain Injury Stakeholder Collaborative was formed whose members are responsible for various projects for ABI and committed to working together toward success.
Our Partners and a Summary of Projects
Brain Injury Association of Nova Scotia
Enhance the delivery of community-based evidence-informed ABI information, education, support, and community for ABI survivors and their families/caregivers and providing survivors of brain injury and their families trust-worthy, relevant, local information.
Enhance and improve access to peer supports and support groups across Nova Scotia by fostering strong Chapters and training leaders and volunteers.
Develop and maintain a directory of current ABI programs available in the province, which considers the specific needs of people with mild, moderate or severe brain injury.
Will develop and pilot community-based ABI day programs to support ongoing recovery and progress toward a return to life, work, and community. Create spots for those who are unable to privately fund the existing Peter’s Place 12-week intensive programming to help ABI survivors return home, work or adapt to new roles.
IWK & NS Health Authority
NSHA will collaborate with partners to develop a Neuro Commons program that will: enhance existing programs and services for ABI survivors and families/caregivers.
Plan for the relocation of the Rehab Centre day program to a more accessible location for clients supplemented by NGO programs and services. Additional investment in the Home First Program (IWK) will give better access to home support equipment and aids for kids with brain injures.
NSHA will create, in collaboration with the IWK, a plan to deliver coordinated and standardized care through an ABI Provincial Network of Care.
Strongest Families Institute
Will develop a training tool to provide caregivers with support, practical helps and group counselling by phone and online.
Will be improving access to continuing care programs for acquired brain injury survivors in their communities by expanding eligibility criteria.
Read on for recent press releases celebrating this milestone and the opening of the first ever purpose-built space for brain injury survivors and their families in Nova Scotia and a bank of news articles on brain injury and our advocacy work.